This blog is small glimpses into my heart and soul - attempts to be transparent with friends, and sometimes, to myself. This is my safe place, where I can come and be purely Ness.

Family: If you found your way here, please do me a favor and don't poke through my closets, ok?

Monday, July 18, 2011

Still Standing Still (as my heart aches)

Exactly two months ago, we finally got in to see a gynecologist. The plan was to ask for testing to see if we could find a reason that I have five miscarriages. It didn't go how we hoped. We did the month of cycle monitoring, and then had to wait another two weeks for a follow up. That was today. The result - pretty much the same thing that went through at the first appointment - only less professional.
He came into the room, told my son to get off the "couch" and told me I had to sit there. Um, there's a reason I'm not up there already. I hate sitting up there. It makes me feel like a child. It makes me feel more vulnerable and less like a person with rights. We're already a bit crappy at speaking up for ourselves, so we shuffle around to our "appropriate" seats. I'm really not sure why this is an issue since Bug sat up there last time, and I definitely did not. But, maybe it has something to do with the young man standing in the corner, who we haven't been introduces to. I have to only assume he's a student doing some shadowing, since I get a glimpse of a McMaster badge hanging around his neck. Now, I have nothing against a student being in this appointment, but surely it would only be common courtesy to introduce him and make sure we are comfortable with his presence. Whatever.
He asks me how I am, what can he do for me?
"Um, I would like some testing, please?"
"Well, I see you are not pregnant."
No kidding. Didn't we have this conversation already? I'm not going to try until we can rule out causes of the miscarriages.
We are interrupted by his yelling at my son to sit down. Excuse me? Where exactly do you get off? Boy politely asks him if he having a bad day, because really he wasn't like this last time. He says no he's not, but this isn't the place for tots. He should be in the waiting room and not getting into my things. You mean the completely sealed package we immediate took away and move him away from? I try to explain that I need my husband with me and we haven't got anyone to leave Bug with, so here he is. He dismisses the issue.
We return to the frustrating circular conversation about whether or not he can do some tests for us. One moment it seems like he can, the next not. Essentially he says he has to have proof to report to the government on why he's ordering the tests. Without proof, he can't order them. There are no miscarriages and no reasons to do testing.
He says if we are "afraid" to get pregnant, that that is a different matter and we can check that everything is ok. What does that mean? What's the difference? At the end he tells us he can give us a referral for genetic testing "on patient request." (What does that mean? It won't be covered?) We accept it, cause it's all we've got right now, but it's not enough.
I'm looking at a clinic in Toronto, and so far it sounds ok - they have a specialist who is researching repeat pregnancy loss, but I'm so nervous that we will drive all the way down there, with hope for help, only to be told the same thing, "Sorry, nothing we can do without proof."
I was so anxious about this appointment for exactly this reason, and now it's staring me in the face. I'm still not moving forward. It took me ages to decide to do this, ages to get the appointment, and nothing. I have to start a new route somewhere and try to keep hoping someone will do tests without us obtaining more "proof."

God, I don't understand. Please, send us people who will help, and who will do so with compassion. Please let us be able to find some answers without having to first get "proof."

Monday, July 11, 2011

Lost In the Dark

Lately I've been feeling like I'm failing at everything, but especially at being a mama. I think it's probably tied into how miscarrying affects my feelings as a mother (not being able to protect them and take care of them = major mama failing), and also because being a mama is my biggest role right now. There are also so many other stressors in my life right now, that so little energy is left for this role. I find myself short on patience and ideas and energy. I'm snapping more, saying "no" a lot, and giving so little time to this one that needs me. I feel like I'm forcing him all the time. Gently forcing, but forcing none the less. I can't figure out how to teach and guide and convince him to do the things that need to be done - like eat and sleep and tidy - without just saying, "You have to. I'm sorry you don't want to, but this is what we're doing," which wouldn't be so horrible if it didn't turn into a fight half the time. I don't like to physically struggle with my son to get his diaper and pajamas on, and constantly bring him back to the bed crying, because he doesn't want to sleep, he wants to play; or tell him again and again, "Eat. Eat. EAT. It's supper time. You need to eat," and then deal with him saying at bedtime, "I'm hungry," and knowing that it might very well be true, because he didn't actually eat that much at supper, but now he really needs to sleep, and if I let him eat, he'll end up being overtired and not sleeping very well, except if he really is hungry he won't sleep well either. (ahhh! deep breath)
Anyways, I'm super struggling with the whole discipline (as in teaching, not as in punishing) thing, and I'm not really sure how to figure it out. I'm frequently drawn to the "let your child express themselves/be their own person/work with, not against" style of parenting, but occasionally it does seem to go too far or have a very humanist view point. I very much want my parenting to be Biblically sound (not in the "you must spank you child" kind of way, cause I really don't think it says that), to honor God, and to teach my son just how much God loves him, but I can't figure out what that all means or how to do that. So I have these two ideas about parenting that I think should mesh, but no idea how do either one, let alone put them together. My lack of energy and patience is not helping.
I feel like I'm hunting for gold, except I only have this vague idea of what a mine is, I've never heard of a pick-axe, and my headlight is on backwards. As I search through this semi-darkness, stumbling around, I can only hope I'll do more good than harm, and perhaps someone who's been this way will pass by and offer a helping hand.

On Failing and Contenment

Finding myself struggling today. I've actually been struggling for a while now with feelings of failure. I think it's pretty common with those that have trouble carrying a child. Not being able to carry out this basic, intrinsic function can leave a women feeling less than, and incomplete, and not enough, and well, broken. It does a pretty good job on your self-esteem, often causing this feeling to flow out into other aspects of your life, and can make a gal feel like she's just not good at anything and is constantly failing. Well, at least that's my experience anyway.
I've been feeling like I'm failing as a wife, a mother, a home maker, and well, just being me and taking care of myself. So many days are made up of randomness, disorganization, and problems. We started this family schedule, but have we managed to actually make it through a day on the schedule? Maybe once. I'm gaining weight, not getting the exercise I want, and spending far too much time online. Boy is supposed to have time to work on some writing he is doing, but it's constantly being overrun by the family things that don't end up staying in their scheduled place. Bug is not eating well enough and spending far too much time watching television, which I can see in his whining and inability to imagine something that's not from his favorite show. Wow. Just writing this out is making me feel terrible. Of course, that's probably also partly due to the fact that it's twenty to twelve and I'm still up instead of in bed, where I should have been about two hours ago, since I am so short on sleep (therefore also everything else) lately. To sum up - I've been very miserable lately and feeling like I'm not good enough at anything.
In reading some posts by Emerging Mummy (If you aren't reading her, you should be. Her writing is beautiful and inspiring.) like this one, I've been realizing that my life is seriously missing some joy and contentment. I am certainly not happy right now. Here's the part I'm struggling with today - scripture tells us learning to be content is important, but I'm pretty sure how we are currently living is not very God honoring. How do I have contentment and welcome joy in, while realizing there are things in my life that need improvement, especially when considering trying to fix most of these things is incredibly daunting (like so overwhelming it keeps me from moving daunting)? How do I strive for a higher goal while still being content with how things are? I know I need the peace of contentment, but I also know that things can't go on as they are and changes need to be made. I'm currently so messed up inside, and this internal struggle and lack of answers is making my brain feel like it's bouncing around in my skull trying to get out. (It makes you understand why little kids have temper tantrums, because I'm getting closer and closer to wanting to throw things.)
The best I have tonight is the very real situation that I need far more sleep than I'm getting. First step - go to bed on time! Second step - seek God. That's all I've got. I need to find some way to make sense of this all, and they say he has the answers. Of course, even that seems daunting right now, and I'm really afraid that I'm going to fail at that too. Trying to make daily time for God has been difficult for several years, and I can't figure out how to make it work.
Somebody pray for me.

Sunday, July 10, 2011

Sometimes Caring is Not Sharing

Do you have one of those people in your life that truly cares, but always seem to have the wrong concerns? I do. She's sweet - sometimes overly so, but at best I can tell, it's not fake. She's soft spoken and gentle, but manages to rub me the wrong time and again.
This morning she asked how I was doing and so I told her about our weekend, and poor Nod, how he got hit by a car, has a broken pelvis, missing teeth, paralyzed tail. How surgery would be $5000 and not a guarantee of anything any ways. How we're keeping him crated, letting him heal, anxiously keeping an eye on his intake and output. How it looked like a long hard recovery, but that he was doing well and showing good signs. (We are actually a bit nervous today, because he needs to pee twice a day, but hasn't since last night - he's shown he can, but if he keeps it in, he'll get an infection.) 
So, I shared all this with her, and then listened in some shock as she went on this little trail about how it's so difficult to let them go, hard to judge their quality of life, hard to balance between their peace with God and wanting their presence with us. ?!?!?!? Are you trying to tell me I should put my cat down?! What the heck?! I think I just sort of nodded in shock and moved away when there was an appropriate time.
She is also the one who told me, with oh so much concern, that I shouldn't let Bug sleep with me, he'd never learn to sleep on his own, he'd have so much trouble being independent; and told Boy that we really shouldn't let Bug go without shoes, it was dangerous and hazardous, and he would catch MRSA, and die. (she didn't actually say die, but...) She also told me about a fertility clinic that a daughter of a friend went to, and wasn't it a a great clinic, and I should look into it, and - next week - here's a print off from their website (cause maybe I don't know how to use the internet...?) Cause apparently I really need to do this (despite the fact that I told her I didn't want to travel to Toronto right now, I was going to stick with my doc, but thank you). Bleh.
Later, she came to let me know that she put Nod on the prayer list for the morning. She really does care, but gosh, it's so unhelpful.

Saturday, July 9, 2011

Friends Are Friends Forever

I <3 Twitter. I've learned the twtspk (a lot of it anyway). Figured out how to share pictures. Followed hashtags. Made up hashtags. Joined Twitter chats. And made connections. I've been on there for about nine months now and I've met so many amazing people. I don't know what it is about Twitter, but the community on there is pretty fantastic. I suppose it's not the same for everyone, but that's been my experience, and it seems to be the experience of most of my "tweeps." The majority of the gals I know (and yes, they are basically all girls, with the exception of Boy, and a fellow barefooter I follow - who I may just drop [sorry] because he doesn't tend to respond when I tweet him, oh - and a couple of "famous" folk I especially enjoy) any ways... the gals are mostly "members" of the infertility community and they continually come around each other to support and encourage in whatever stage they are at, whether it be the infamous "two week wait," starting a new procedure, dealing with a "BFN" (big fat negative pregnancy test), going through a miscarriage, or, wonder of wonders, celebrating a "BFP" (positive test).
Yesterday, we realized that many of us have another thing in common - lack of close friends in the places where we live. We chatted and dreamed about living in a community all together, bringing these friendships in closer and being able to support each other in person (grow a garden, raise some chickens, keep a cow - there was also mention of flowers, a tractor and booze - we're all set!). It's a pipe dream, but I was humbled and honored that they all wanted to include me. It's so nice to be liked and wanted, you know?
Unfortunately, it got me wondering - would they continue to like me so much if they met me in person? I don't have a great friend history. I've always had a hard time making friends, and occasionally the people I thought were friends, really didn't care all that much about me. I've struggled for a lot of my life with feeling like people would really rather not have me around, like I annoy them. I've had very few truly trusted friends over my life - actually I can count them on one hand - and I don't have any here and now.* I don't really understand it, but it makes me wonder - would they still like me if they met me?
I like bubbly, energetic people, but they are usually not drawn to me. I'm sort of shy, and don't often say a lot, except when I say too much.  I am a perfectionist, and it tends to make me overly critical. The bad things stand out to me so much more than the good things. I can find the bad in anything. I have an overly strong urge to correct, which I am slowly learning to temper. I am too sensitive and it's not unusual for me to be emotional. I can usually control my words, but my facial expressions are another thing. I don't change directions or plans easily and I NEED to know everything that is going on. I procrastinate terribly, and I think of all sorts of lovely things to do for others, but rarely actually do them. I want to, but I'm bad at making myself actually do it, and I get nervous. I don't have a lot of guts. I'm always afraid of what other people think and how they will respond to me. I have the hardest time approaching people I don't know really well about almost anything - to say "hi," offer help, ask a question. I tend to be an observer and not a participator. On Twitter it would be so easy for me to sit back and just read, interacting only occasionally. Sometimes, I have to push myself to respond, to put myself out there, to share my thoughts, to encourage, support, and love. It's totally worth it, but it doesn't always come easily to me. Plus, I'm always afraid I'll say the wrong thing. (And apparently I have self esteem issues.)
And, in this community I wonder how I would fit -with my beautiful little boy, and my ability to get pregnant (although not stay pregnant). Would having me around be hard? Would they resent that I had a son with no difficulties? Would they be ok meeting me along as he wasn't there? Would I be an outsider because I have responsibilities to take care of him, and not the freedom to whatever, whenever?
I hope that we would still be friends in real life. I have great appreciation for all of these ladies and the love they show one another, they way they share their lives, their pain, sorrow, and joy. I hope that they would see in person the same things they see on Twitter - the love I want to give, the kindness I want to show, the heart I try to reveal. I love to laugh and dance and sing. I have a good sense of humor, even if it's often a little sarcastic. I'm loyal to a fault and quick to forgive. I'm honest and trustworthy. I value my friends and have a heart of generosity towards them. I have a gentle heart and hate to see anyone in pain.  I cherish my friends and always try to treat them the way I would want to be treated.
I would love to meet some of the online friends I have made - infertile community or not - and I hope it would just strengthen our relationships, bringing us closer together.

*I do have a few dear friends who are still dear to me, but we've grown (moved) apart a bit and don't talk as often as we'd like.

By the way - bonus points for anyone who can tell me what song that title is from.